More than a life it is an ordeal.
Guendalina Cau, 49 years old, from Terralba , spends her days between her bed at home and the emergency room in Oristano. He can no longer go shopping, he hasn't had an aperitif with friends for a long time, he can't go for a walk in the sun. None of this is normal.
Now, however, she is tired of "not" living and makes an appeal : "I only ask that someone take care of me seriously, that they study my case, that they read all my medical records carefully."
For Guendalina Cau the first two diagnoses arrived in 1999. «I suffer from perivascular mastocytosis, but I also have mast cell activation syndrome. Plus many other pathologies. I don't live, I survive." Guendalina Cau has been visited by many doctors in ten years, both in Sardinia and also overseas: «Everyone has always told me that my situation is very delicate and complex. But no one has ever stopped to study my case."
Guendalina Cau lives with lots of pain all over her body . But she also has to be careful about what she eats: «Every other day I swell up like a balloon - she says - and everything comes out in my skin. If I make a mistake in some food it's the end. I'm suffocating." He can't even smell anything: «I'll pass out immediately. If someone comes into my house with perfume on their skin it's a big problem. I ask to be treated. I still want to live."
